Wednesday, May 30, 2007

Kendall's Graduation & Patty Tx Update

Kendall graduated from Kindergarten last night. It was a great event. A funny story was they wrote down what they wanted to be when they grow up and held it up at the end of a song they sang. Pics below.

Patty is doing ok. She starts the Tamoxifen today or tomorrow. Hello hot flash. Hopefully she'll be able to cope with it over the next five years. It is a daily pill that helps prevent a breast cancer recurrence. Symptoms are similar to menopause. When you look at all of the possible side effects it sounds kind of scary. Her axilla continues to heal. Hair continues to grow. And we continue to attempt to get back to some point of normalcy. Is that possible? I don't think so. We're going on a camping trip this Friday. Our last camping trip is when Patty discovered the lump. I hope it doesn't bring back in flashbacks.





Wednesday, May 23, 2007

Patty Update

Patty's hair continues to grow back quickly. The problem she is not used to trying to style what appears to be an extremely short haircut. However she does it she manages to make it look good! I believe the recipe includes a lot of gel and hairspray.

Her skin under her arm is still a bit raw but it has improved greatly. She says there is a little tender spot which is interesting because she can't feel anything under her arm. Her main complaint is muscle tightness in raising her arm. I've told her she needs to exercise this to stretch those muscles.

We've got a camping trip planned for June 1st. Kendall graduates from kindergarten on March 29th. Brett is starting to talk up a storm. He has the biggest grin of any of our kids. He has become my mood elevator. Whenever I'm stressed, looking at that smile that encompasses his whole face rather than just his mouth, I can't help but feel a sense of joy.

Thursday, May 17, 2007

Patty's Radiation Treatment Complete

I apologize for the lack of posts over the last couple of weeks. I've been out of town for work (mostly) or play 8 out of the last 9 days.

Patty finished her radiation treatments on Monday. She has done well except for one area under her arm that the skin has broke down. It doesn't look good but she is being a trooper. Luckily, she still can't fill under her arm so it is not as painful as it looks.

We celebrated her finishing by her and the kids coming up to Cincinnati with me on a business trip this week. We went up a day early and went to the Cincinnati Zoo which was really nice. It took us six hours to "do the zoo". Brett was amazing as he walked the whole zoo all day without riding in the stroller. This boy is going to have some stamina. I wish I could say the same for Grant and Kendall. We had a great time though as a family. It almost got canceled but we persevered.

The next day the Patty and the kids hung out at the indoor pool of the hotel we stayed while I was gone to do a presentation on Cancer Services strategy. Sounds like fun doesn't it!

It looks like reconstruction is the next hurdle. So we'll be making some decisions towards that soon. Also, the big Relay for Life fundraiser is coming up of which I'm going to post a link here soon to help me in fundraising to support cancer research.

Tuesday, May 08, 2007

Treatment Update

Patty is down to her last five treatments. She finishes her radiation treatments next Monday. After that she will continue the weekly Herceptin infusions through December. She will also soon start on a medication called Tamoxifen that she will take for five years. In simple terms, Tamoxifen is a drug that helps prevent the cancer from recurring.

The radiation treatments have gone well. One area under her arm has become real red and sore but nothing extraordinary. Her issues with the breathing and the dizziness seemed to have faded. Part of it might have been we discovered was the fact that she had starting taking my Prilosec thinking it was one of her medicines. Good grief!

Her hair continues to grow back fast and furious. She's got a ponytail already, ....just kidding. Actually its long enough where she has for the most part ditched the wig and is sporting a spiked number that looks good. She's got her some new "celebrity" sunglasses that match it well.

There are still some big decisions out there to be made. Patty seems to be pretty adamant about having reconstruction done. Truthfully, I was a little surprised at this. It is a big surgery and one that may have to be done out of state which brings up all kinds of logistical issues.

Tuesday, May 01, 2007

The 91st Psalm

Patty says the dizziness and breathing issues seemed to be better. We haven't heard any of the results from the scans which is usually a good thing. She will return for her Herceptin infusion on Thursday of which they will probably communicate the results then.

Yesterday in my quiet time I just wanted to read a Psalm. Not any one in particular, but the number 91 just jumped into my head. After reading it I realized it wasn't just a coincidence. It was the Holy Spirit guiding me to be in the Lord's shadow. Read for yourself.

Psalm 91

(Contemporary English Version)

The LORD Is My Fortress

1
Live under the protection of God Most High and stay in the shadow of God All-Powerful.

2 Then you will say to the LORD, "You are my fortress, my place of safety, you are my God, and I trust you."

3 The Lord will keep you safe from secret traps and deadly diseases.

4 He will spread his wings over you and keep you secure. His faithfulness is like a shield or a city wall. [a]

5 You won't need to worry about dangers at night or arrows during the day.

6 And you won't fear diseases that strike in the dark or sudden disaster at noon.

7 You will not be harmed, though thousands fall all around you.

8 And with your own eyes you will see the punishment of the wicked.

9 The LORD Most High is your fortress. Run to him for safety,

10 and no terrible disasters will strike you or your home.

11 God will command his angels to protect you wherever you go.

12 They will carry you in their arms, and you won't hurt your feet on the stones.

13 You will overpower the strongest lions and the most deadly snakes.

14 The Lord says, "If you love me and truly know who I am, I will rescue you and keep you safe.

15 When you are in trouble, call out to me. I will answer and be there to protect and honor you.

16 You will live a long life and see my saving power."

Isn't that calming prose?

The part about the lions was very interesting to me. I don't recall if I've discussed this before but I had a very vivid dream soon after Patty's diagnosis that relates to this. I've not discussed it much because I'm very cautious about proclaiming that the Lord spoke to me in some form or fashion. If anyone is interested I can relate it in another post.

Monday, April 30, 2007

Radiation 2/3 Complete

Patty saw the doctor last Thursday about the dizziness. He said it could be from some of the medication. Over the weekend it actually has improved.

Patty also has been having a feeling of not getting enough air when she breaths. She also talked to the doctor about this but he didn't seem to be too concerned. He sent her for an EKG Friday and a MUGA Scan this morning. Both are tests for your heart. The Herceptin infusions she is taking weekly have a small chance of causing heart problems. She has had two so far that have been fine. From what I've read there is a good possibility that the breathing issue is stress related.

Today will be her 23rd of 33 radiation treatments. She has been handling this like a champ. I'm starting to see the fatigue set in on her and her skin has been itching her a lot but otherwise she has not has any major reactions.

Friday she took Kendall to the zoo. She said there were 27 other schools there! Luckily, they both like the zoo. Patty walked around with Kendall and another little girl from her class whose parent wasn't there. While they were sitting eating an ice cream a bird came and, uhhhhhh, took care of business in the little girl's hair and Patty's shoulder! Next they sat down on some railroad ties and the little girl's shorts got tar all over the back of them. Patty told the teacher that this little girl's parents are going to wonder who was chaperoning their child!

Wednesday, April 25, 2007

Update on Patty

Patty hasn't been feeling great the last few days. She's had a light headed feeling and can't seem to get a deep breath. She's not sure if she's just become acutely aware of her breathing or what. I've read that the Herceptin can cause dizziness in 13% of patients so I'm not sure if this is what this could be or not. Hopefully, it is nothing. She's sees the doctor tomorrow so we'll see what he says. Pray that these issues resolve for her.

Monday, April 23, 2007

Team Katie & Kendall

I came home Wednesday night and Katie and Kendall had been making paper dolls. Katie told me she wanted to sell them for money to make Mommy feel better. Since its that time of year for the American Cancer Society's Relay for Life fundraiser, I told her we could sell them to raise money for the ACS. They could hardly wait. They wanted to sell them right then!

So Friday night I helped them make a poster and they also made some no bake cookies with Mommy. They had their aprons and chef hats while they helped. We got up early, put on our Relay shirts, gather our signs, scooped up our paper dolls and cookies and headed down to the commons area of the subdivision. We got setup and waited, ....and waited, ...and waited, then finally we had a customer. Friends of ours Darrell & Beth were on their way to DisneyWorld so I asked them to stop by because I was afraid that we wouldn't get much business. How wrong was I?

Luckily someone was having a yard sale up the street which brought in a lot of traffic. Many drove on by but quite a few people stopped and got their paper dolls or "cow patties." Before I knew it, these little girls had raised, drum roll please.............., $80 in an hour and a half! Can you believe it? All on their own, their own idea. I was so proud of them. A silver lining on this dark cloud of cancer.

They already are bitten with the bug of success. Kendall informed next week we're going to Fountain City Park to sale them! Below is a pic of our volunteers. You can see them with their new glasses posing with their cookies and paper dolls.

Friday, April 13, 2007

Treatment Update

Patty is a 1/3 of the way through her radiation treatments now. She is doing relatively well with them so far. She has been extremely tired lately so we thought her red blood cell counts might be low but they checked it yesterday and it was ok. They're going to check her thyroid to see if there could be any issues there. She got her Herceptin treatment yesterday as well and it went as expected.

She has started to venture out without her wig in the last week. She's got enough hair to try to spike it up but it doesn't want to cooperate for some reason. It wants to merge towards the center and form a mohawk. Its also coming in a light brown rather than the dark brown she used to have. She's also began to lose some of the weight the steroids added while she was having to take those. She has also been trying to continue to work out when she can.

I plan to keep updating so keep reading! Also please continue to send Patty notes of encouragement if you want! Have a great day!

Monday, April 09, 2007

Random Musings

We had a great Easter yesterday visiting with family and friends. We also sneaked (I just learned "snuck" is not a word, lol...) in a little fun towards the end of the day with a movie.

Patty's hair continues to grow back in but it is more of a light brown rather than her normal dark brown. Her radiation treatments continue as well. She's been having back and chest pain lately which always brings her concern that something is wrong. Who can blame her?

That's one thing we will have to deal with I guess from here on out. I've kept holding out hope that things will ultimately return to normal but I'm beginning to realize that is not a possibility. A 'new' normal will have to develop which is something I'm trying to grasp.

Cancer is a journey. Long for some, short for others. But cancer is by and by becoming more and more a "chronic" disease. In the past, metastatic cancer was considered a definite death sentence but now, people are living for long periods of time even after their cancer has recurred. Just the other day I picked up a chart on a patient who had breast cancer in 1981. It recurred in 1984 but she is still alive today due to the different types of treatment that have become available throughout the years. Encouraging news for survivors such as Elizabeth Edwards or Tony Snow who recently announced they are battling metastatic cancer. Our prayers are with them in their battle.





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Wednesday, April 04, 2007

Treatment Update

Patty completed her 6th of 33 treatments today. She's 18% of the way, lol... She's handling the treatments well. Usually, side effects from the radiation treatments don't begin to develop, if they do, until after 10 or more treatments. Hopefully and prayerfully these won't develop.
Her Herceptin infusions continue to take place every Thursday through the end of the year.









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Thursday, March 29, 2007

ACS Releases New Breast Cancer Screening Guidelines

Yesterday, the American Cancer Society (ACS) released new Breast Cancer screening guidelines for women who have a higher risk to develop the disease. Click HERE to read them. Why did they do this you may ask? In the adjacent picture you can see the mammogram on the left and an MRI on the right of the same patient. Obviously there is much better detail on the MRI. MRI is not being recommended to replace mammograms but rather to complement them. For example, calcifications will show on a mammogram but might not on an MRI. Often calcifications are indicative of a possible cancer. MRI's also have built in software programs that use sophisticated algorithms to detect probabilities of cancer in lesions identified.

I may have told this story before so if I have please forgive me. When Patty had a biopsy of an area in March at my urging, the doctor had said it wasn't necessary, there was a another very small area that was seen. It did not look like a breast cancer. It instead looked like a benign lymph node. It was also in a difficult location to biopsy without causing a lot of pain and misery (This is not the area where a cancer ultimately developed). The Radiologist said we could get an MRI but he didn't think it was necessary. Patty had just had two biopsies and didn't want to have to go through another procedure. My instinct and experience was to disagree and strongly suggest that it be done but, I was persuaded by her weariness and his experience. And, her risk over the next 5 years of developing breast cancer according to several risk assessment tools was ONLY 2%.

Worst mistake I've ever made. I regret not following my initial instinct and knowledge EVERY day and will for the rest of my life. If we had proceeded, the MRI would have most likely discovered both areas in their earliest stages.

I said all that to say, for the current time it is still going to be difficult to obtain a Breast MRI unless you meet certain criteria. See the criteria below:
  • have a BRCA1 or BRCA2 mutation
  • have a first-degree relative (parent, sibling, child) with a BRCA1 or BRCA2 mutation, even if they have yet to be tested themselves
  • lifetime risk of breast cancer has been scored at 20%-25% or greater, based on one of several accepted risk assessment tools that look at family history and other factors
  • had radiation to the chest between the ages of 10 and 30
  • have Li-Fraumeni syndrome, Cowden syndrome, or Bannayan-Riley-Ruvalcaba syndrome, or may have one of these syndromes based on a history in a first-degree relative
This is due to the cost of the exam. Mammograms are relatively cheap in the health care arena. MRI's are not. These new guidelines may or may not be followed by your insurance company. There is a risk calculator that will be used to help see if you qualify for a Breast MRI. I strongly urge every female reading this to click HERE and assess your risk. Men, have your wives assess their risk.

One thing to keep in mind is this. If you don't meet the criteria but your intuition gives you concern or the physician wants you to return in six months for a follow-up exam, insist on having a breast MRI even if your risk factors do not meet the requirements (see above). You may have to even pay for it yourself. At that point you'll have to ask yourself, how much is your health worth or your peace of mind? Tough question.

Tuesday, March 27, 2007

March 22nd Spurgeon Prayer Link Corrected

I found out the link I provide to the Spurgeon devotional on prayer was not the right link. For those of you who attempted to read it I have updated it to reflect the correct link. It is HERE as well.

Final Setup Today

Patty comes in today for her final setup to begin her radiation treatments.

To explain, most patients come for an initial CT scan through their area of treatment so that we can then develop the most optimal treatment plan to treat them with. Once that is complete, we then bring them back in to "confirm" that the treatment plan is indeed most optimal. Once this is complete and approved by the physician, we can then begin their treatments. Once treatments are started, we image the patients daily to assure that we are indeed delivering the plan that was created. Got it? I thought so, lol...

Please continue your prayers for us throughout this process. Specifically that Patty doesn't have any unfavorable skin reactions to the radiation and for us as a whole. Trust me, we need them.

Spring Break

We didn't do much over Spring Break. I took Monday through Wednesday off and we traveled down to Chattanooga to visit with some good friends of ours that used to live here in Knoxville. Some of you know them as Earl Marcey.

We went down Monday afternoon and the next morning we headed off to the Georgia Aquarium. Self-purportedly the "World's Largest and Most Engaging Aquarium." Do you feel a review coming on? Good.

It was relatively easy to get to and the line wasn't long to enter except for the security. We had purchased tickets ahead of time online of which I definitely recommend. Be sure to print out the tickets they email you before you come though. One small step I seemed to miss. Alas, it wasn't a big issue as the will call line wasn't long and we traversed right on into the Aquarium. The design is well thought out as it is a pod design where there is a central Atrium/Lobby that is surrounded by 5 pods appropriately separated by aquatic life (river, ocean, etc.). With this design your not in one continuous line and you can enter whichever one looks the least crowded. It took us about two hours to tour the whole facility.

They do have some aquatic life that I had not seen before. I've been to several aquariums (Monterey, Newport, Ripley's, and Chattanooga) and hadn't seen a Whale Shark



or a Beluga Whale.







Both of these were pretty impressive. As far as being the largest aquarium in the world, well, it didn't seen any bigger than other aquariums I've seen. But, maybe that's just my revisionist memory, lol... It is definitely worth the trip to see it as least once.

We left and headed back to Chattanooga where we spent the night again with Earl Marcey. We got up and headed back the next morning. Below is a pic of the kids along with Earl Marcey's kids Alex and Eliza.





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Thursday, March 22, 2007

Phase 3 Begins (LINK UPDATED)

Patty is here today to begin the first procedure of what will be a 7-8 week process; Radiation Therapy. Once again refreshing in my mind how surreal this whole process has been and still is. I still find it hard to believe that my wife is here at my work for treatment. I never visioned such a scenario. Sometimes there are snippets of time where we can get away from this whole thing but today is not one of them. I was feeling
kind of down this morning as the reality set in that she was coming
today. I needed some encouragement so I turned to Spurgeon's daily devotional and found this,


“And he went a little farther, and fell on his face, and prayed.”

Matthew 26:39

Ok, that seemed to be a rather timely message to read. So, I sat down and did as such. I then read the rest of the devotional and it is another of his gems that can be treasured to read over and over again. Thus, I'm going to provide the link below to the whole devotional. Click HERE to read.

I then begin to wonder what Patty thinks about having to come here for treatment? I'm sure its surreal for her as well. Maybe I'll ask her to post here what it is like. I guess she'll get to know many of my co-workers well.

The day didn't start off well for her. She went this morning for her Herceptin infusion. It didn't go as well as usual. They had to stick her 5 times before they finally got access to her port to do the infusion. Not to mention the pain of being stuck but the bruising will probably be bad as well. Hopefully she'll have a better afternoon. I think her and some other friends are going to go to lunch and take the kids to the park.


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Friday, March 16, 2007

Stepping Out

I apologize for not posting as of late. Katie developed the flu and its made it for a more strenuous week. Today is her first day back to school. Luckily, nobody else has developed it, especially Patty because this week her counts from the last chemo treatment or the lowest.



Last night, Patty spoke for the first time about this ordeal she/we have been traversing. The group she spoke to was the ladies' group from our church. They meet once a month on a Thursday night for a time of discussion and fellowship. There is always a guest speaker and so last night Patty played the part. She said there were approximately 30 ladies in attendance. I asked her how she did and she said, "good." I could infer from her voice it indeed went well. Funny thing how you can infer the real meaning of a spoken word just by the tone. She had practiced it for me the night before and I was soundly impressed. She said she had been practicing ;). Patty's has always been lacking in the self confidence category. Unduly so, as everything she puts her mind to she does it with excellence.



Anybody have any good ideas for a quick Spring Break trip?





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Friday, March 09, 2007

What Come of This?

Patty received her weekly Herceptin infusion yesterday without any issues. She is still feeling a lack of energy from the chemo treatment last week. Chemotherapy is cumulative so its probably the culmination of all the treatments as well as the shots to boost her red and white blood cell counts.



She has started an exercise program we offer at our Fitness Center that is designed with cancer patients in mind. She has already jumped right into the program. Yesterday she said she rode 3 miles on the bicycle and walked another 1.5 miles. Studies have shown that a moderate exercise program while under treatment will improve fatigue levels.



Changing gears, you wonder what God has in store for you on the other side of tragedies such as this. I've wondered that a lot actually. Last night, I met a wonderful lady who had recently underwent a mastectomy for breast cancer. When she learned my profession she had lots of questions about breast cancer of which I was able to help her better understand it and her situation. I was sort of taken back about how thankful she and husband were afterward.



Even though I was in the field before this I didn't know a quarter of what I've learned about breast cancer since. What was ironic about this encounter was I had just spoke to old friend earlier in the day, who through describing a trial of his own, spoke about how God uses events such as this to prepare us for his work and will. On the way home last night I recalled that conversation and wondered if being a resource for others facing this is meant for me. If that is the case, I'm ready to help as many that face this issue as humanly possible.









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Tuesday, March 06, 2007

The Next Step

Well, Patty showed up at my work today and it wasn't to see me. Today was her initial consult with our Radiation Oncologist. There was some debate about whether or not she should receive radiation therapy or not but after pouring over the latest clinical trial and study results it looks as if there is some benefit to be gained by having the radiation. Small but albeit there. Additionally, it appears that if she opts for reconstruction it is advantageous to perform the radiation before any type of reconstruction. She's going to wait until after Spring Break to get started so that she can recover fully from the chemo and not have to drag all four kids to the treatments.



She looks as if she is on the upswing she is still having some significant back pain but it is bearable if she is on the meds. Having injections to improve both her white and red blood cell counts is definitely a longer recover period for her.





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Monday, March 05, 2007

Doing Better Today

Patty has done much better today. Holly watched the boys for her so she was able to get some good rest. Her back has started to feel better but still is bothering her some.



I took Kendall for her annual eye appointment today. She received a good report on her Amblyopia. We were a little early so I stopped at my "local watering hole," Starbucks, and got her a hot chocolate. She was stoked that she got to sit in the parking lot with me in the front seat and drink her hot chocolate. It took her all of about 3 gulps to finish it.



Katie finally let me pull a loose tooth today. Oh, the horror!





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